Take 5.........

It's been a long week here at the Fenskes. On Wednesday, I awoke to find the back of M's head swelling yet again. In usual fashion, the pediatric neurosurgery clinic worked her in for an evaluation. Unfortunately, our primary neurosurgeon is out of the country for a month so we saw one of the two NPs. I had met one of them prior to M's last surgery and really liked her a lot. To my disappointment, she was not the one we saw. The neurosurgeon covering did not have time to see us (and when he finally did many hours later, I was not real impressed), so the resident took care of us for the most part. He is actually really good - I had my doubts last time, but after getting to know him a little better, I really like him and trust him a lot. After tapping M's shunt and reviewing the MRI, it was decided she would be admitted to the hospital for monitoring and possible surgery Thursday morning. I had a really difficult time believing that my baby was going to have her FIFTH brain surgery in four months!! An xray shunt series and abdominal ultrasound revealed no obvious problems with any part of the shunt system. This was good news, however, we still didn't have an answer for her swelling and irritability. It was a looooooong night as M did nothing but cry frantically. The resident saw us again in the morning and it was decided that surgery would not be happening for now. They were hesitant to cut into her yet again without absolute proof of a shunt problem, especially since her sutures haven't even dissolved from the last surgery. The current theory is that she has a leak around the shunt catheter and that it is ever so slightly possible it will seal itself off. So, we are home, watching and waiting....hoping and praying.

My Brave, Little Soldier

Now that we've had time to take a breath, I thought I'd provide a better update. When I woke M up Monday morning, I noticed a large swelling at the back of her head. It wasn't there at 2 a.m. and was quite big at 6 a.m. Knowing that she had been having some fluid accumulation in her fourth ventricle I pretty much figured surgery was going to be our course. I was able to see our neurosurgeon at 10:00 a.m. and after an MRI to confirm the shunt failure, we were admitted to the hospital by about 12:30 p.m. Surgery was scheduled for 3:00. After an hour and half of nurses and the venous access people trying to start an IV, the OR decided they couldn't wait any longer and we were taken to pre-op. M was taken into surgery around 3:30. At 5:00 a nurse came in to give me an update. I assumed she was coming to tell me surgery was finished (it was supposed to take about an hour and a half). She was coming to tell me that they were just now getting started. It took 1 1/2 hours for the anesthesiologists to get her IV started. She ended up with a femoral line. The actual surgery took a little longer than originally thought, but our doc was extremely pleased with the outcome. He decided to remove M's original shunt and replace it with a different type. He also changed the position a bit. Hopefully this will be her last surgery for a long while. Four brain surgeries in four months is just too much for anyone! We stayed in the hospital overnight and after M recovered from her respiratory problems, she rested comfortably. We were discharged late yesterday afternoon and she continues to do well at home. We'll be hiding out for the next week or so letting her rest and heal. Risk of infection is of course our biggest concern at this time. Thanks again for the prayers and well wishes - it means a lot to us!

Home

Sorry for not posting sooner. M did great with her surgery. It was much longer than expected, mostly due to the fact that they could not get her IV started down in the OR. She did well, however, experiencing only some transient respiratory problems last night. We are home and trying to settle in. Thank you to everyone who called, emailed, and stopped by. It sure is great to know that so many people are praying for your child.

Surgery

I am posting from the Children's Hospital Surgery waiting area. Sweet baby M had to have an emergency shunt replacement this afternoon. She is in surgery now and I'm asking for prayers and healing thoughts to be sent out for her. I will update as soon as I am able.

Thank you!

Doctors...doctors....and more doctors

Hi all!

Boy you'd sure think I'd have tons of free time to blog what with not working an all. This little girl really keeps me running! Between trying to keep the house as clean and germ-free as possible and getting her to all of her doctor appointments, there's not time for much else.

Overall, M is doing pretty well. Her sleep has improved some, however, she is battling a nasty cold so that complicates things a bit. I looked back and there have only been 4 days since we've been home that we've not gone to a doctor appointment. We're getting her established and getting to know all the doctors and specialists. So far, I love them all!! We are so blessed to have access to some of the finest medical professionals and facilities in the nation.

E is doing great, too. He is learning, although not happily at times, how to share Mommy's and Daddy's attention. He is the best helper I could've ever asked for. He is always asking me what I need and running to get diapers, wipes, the "booger sucker", toys, blankets, you name it. He's not super cuddly with M yet, which during the cold and flu season is probably a good thing. (Oh - and no, it was not his birthday or anything. I made him a cake and we had a "Big Brother Party").

While I'm pretty worn out at the end....who am I kidding....the beginning, middle and end of the day, I'm finding it so incredibly rewarding to be a mom to two beautiful children. I've been subject several times over the last two weeks to the "you are such a saint" comment and I just want to say - we adopted the children that chose us. Yes, they have special needs, yes they were born into unfortunate circumstances. We do not claim to be saints, nor do we feel like our lives are any different than anyone else's lives with two children. The only difference I see is that we manage our time a little differently, and have more appointments to manage and resources to employ. The thing is, it's all we know. So, thank you, I know you mean well, but we really are just a couple of people who wanted children. We have been blessed beyond imagination with the two we have and look forward to adding K to our family also.

Alright, I know why you really came here and for your patience, you will be rewarded. Here's some of my favorites from this week: